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Contact Your Senators re: Sickle Cell Disease Treatment Act, HR 2410, Senate Companion Bill
Last month, the sickle cell community celebrated with the announcement of two legislative
Read MoreNational Minority Quality Forum Joins NIH in Launching the All of Us Research Program to Advance Precision Medicine
On May 6, the National Institutes of Health will open national enrollment for…
Read MoreSickle Cell Groups, Pfizer Work to bring Black Americans Into Clinical Trials
It’s been nearly half a century since the end of Alabama’s
Read MoreNIH researcher presents encouraging results for gene therapy for severe sickle cell disease
WHAT: A scientist from the National Institutes of Health will present promising, early results from a human clinical trial testing a novel gene replacement therapy in people with severe sickle cell disease. Preliminary findings suggest that the approach has an acceptable level of safety and might help patients consistently produce normal red blood cells instead of […]
Read MoreAmerican Society of Hematology to Launch Sickle Cell Disease Clinical Trials Network
Published on: September 12, 2018 (WASHINGTON, September 12, 2018) — The American Society of Hematology (ASH) is launching a sickle cell disease (SCD) clinical trials network in order to accelerate the development of new therapies for a patient community that has very few treatments and curative options. The core activities of the network will include […]
Read MoreCharles F. Whitten: Black History Month SCD Pioneers 2019
February 27, 2019 Dr. Charles F. Whitten: A Physician. Medical pioneer. Founder and President Emeritus of the Sickle Cell Disease Association of America, Inc. Dr. Charles F. Whitten was a physician, a medical pioneer and the founder and president emeritus of the Sickle Cell Disease Association of America, Inc. (SCDAA). His dedication and commitment to […]
Read MoreGBT Launches ACCEL Grants Program to Improve Access to Care for People with Sickle Cell Disease
February 22, 2019 | —The Access to Excellent Care for Sickle Cell Patients Pilot Program (ACCEL) Supports Novel Projects Aimed at Improving Access to High-Quality Healthcare for People with Sickle Cell Disease— —GBT Will Fund Proposals With the Highest Potential to Impact Patient Care— SOUTH SAN FRANCISCO, Calif. – Feb. 19, 2019 – Global Blood […]
Read MoreTexas State Representative Jarvis Johnson Files Four Sickle Cell Disease Related Bills
Sickle Cell Association of Houston has been working on new state legislation in Texas, and on March 6, 2019, State Representative Jarvis Johnson filed four bills that will raise awareness, create a grant program, and improve the lives of those living with sickle cell disease in Texas. “Sickle Cell is too often a forgotten illness, […]
Read MoreSCDAA ICER Webinar
January 16, 2020 ICER Webinar: An introduction to the Institute for Clinical Economic Review (ICER) and Their Implications for New Sickle Cell Disease Treatments: A Primer on the Issues on January 16, 2020, 2:00-3:00pm. We are pleased to share that the myth/fact sheet, the FAQs and the webinar invitation are live on valueourhealth.org/sicklecell. We welcome […]
Read MoreP.O.W.E.R ECHO Project Community Health Worker (CHW) Training
Cost: Free Starting Feb. 06, 2020 11 AM – 12:30 PM EST Zoom online training Sessions are held on a monthly basis The P.O.W.E.R Community Health Worker Training is designed to assist community health workers with resources and education, in order to strengthen their efforts in providing support services for sickle cell disease (SCD) patients. […]
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