Monthly Archives: February 2020


ON WORLD SICKLE CELL DAY, MEDUNIK USA HIGHLIGHTS THE IMPORTANCE OF EARLY TREATMENT OF SICKLE CELL DISEASE

February 5th, 2020

19 June 2019 ROSEMONT, PA, June 19, 2019 – This World Sickle Cell Day, Medunik USA, a company dedicated to improving the health and quality of life of Americans with rare diseases, highlights the importance of early treatment of sickle cell disease. “Sickle cell disease is a destructive nemesis. The keys to winning this life-long […]

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P.O.W.E.R ECHO Project CBO Training starting February 18, 2020

February 5th, 2020

When: Feb 18, 2020 11:00 AM Eastern Time (US and Canada) Register in advance for this meeting: https://echo.zoom.us/meeting/register/vpMtcOGupzgsaf5KlqAhEibOijKXIQxcZQ After registering, you will receive a confirmation email containing information about joining the meeting.

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FORMA Therapeutics Announces FT-4202 Granted Fast Track Designation and Rare Pediatric Disease Designation for Treatment of Sickle Cell Disease

February 20th, 2020

  WATERTOWN, Mass. – February 20, 2020 – FORMA Therapeutics, Inc., a clinical-stage biopharmaceutical company focused on rare hematologic diseases and cancers, today announced the U.S. Food and Drug Administration (FDA) has granted Fast Track designation and Rare Pediatric Disease designation for its lead clinical asset, FT-4202, in development as a disease-modifying treatment for sickle cell […]

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SCDAA Advocacy Institute April 2021

February 25th, 2020

Our Mission: To advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.

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SCDAA Leadership Academy – March 19, 2020

February 25th, 2020

Topic:  The Dynamics of Fundraising Trainer: Michelle Nusum-Smith Time: March 19, 2020 2:30 pm – 3:30 pm Get in touch with us today! Office location: 7240 Parkway Drive, Suite 180 Hanover, MD 21076 Contact information: (410) 528-1555 Website: www.sicklecelldisease.org

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