September is National Sickle Cell Awareness Month

September 17, 2020

National Sickle Cell Awareness Month was designated by Congress to focus attention on the need for research and treatment of sickle cell disease. Please check the SCDAA’s website ( frequently for conferences, advocacy, blood donations and other events held throughout September.

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SCDAA’s 48th Annual National Convention 2020 Is Going Virtual! October 13-17, 2020 (ET)

September 8, 2020

Given the current uncertainty regarding COVID-19 and its implications for attendee safety and travel, as well as for public health concerns, SCDAA’S 48th Annual National Convention is moving to a virtual gathering! Registration for the 48th Annual National Convention is open!

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SCDAA MARAC Position on 2020 School Reopening

July 30, 2020

SHOW THIS TO YOUR CHILD’S SCHOOL PRINCIPAL TO HELP THEM HELP YOU. July 27, 2020 – Sickle cell disease remains a high-risk condition for severe COVID-19 infection.1 Registry data show that individuals with sickle cell disease are more vulnerable to death with COVID-19 at all ages, including children.2 We recommend that families with children with […]

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UPDATE: First IASCNAPA Conference Rescheduled to April 9, 2021

April 1, 2020

The International Association of Sickle Cell Nurses and Professional Associates (IASCNAPA) Sickle Cell Conference: Treating the Whole Person scheduled for 4/17/2020 is cancelled due to COVID-19 concerns. The decision to cancel the conference took into account many important factors, including the risk of unnecessary exposure to our patient population. The event is rescheduled for April 9, […]

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Elsevier’s Patient Access Program for Research

March 26, 2020

Access for healthcare professionals & patients With our Patient Access Program, patients and their caregivers can receive medical or healthcare related research papers by emailing This email is constantly monitored by our support teams, who aim to provide individual articles at no cost to patients and caregivers within 24 hours. Requesters simply need to include the […]

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