SCDAA ST. Petersburg Florida Celebrates 50th Anniversary

June 30, 2022

Mary F. B. Murphy began her trail-blazing work by opening the first sickle cell disease foundation in Florida in 1972 and began operating the organization out of her own home. Today, that organization has grown to serve 135 families with sickle cell disease. Please click here to learn more about Mary’s journey

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Shine The Light On Sickle Cell

May 30, 2022

A national awareness campaign to celebrate World Sickle Cell Awareness Day on June 19, 2022. We invite you to join with friends, family, neighbors and others in your community, as people around the nation and across the globe, host and hold local gatherings to shine the light on sickle cell disease. Together, we must and […]

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MARAC Advisory Statement Update: Covid -19 and Sickle Cell Disease

March 18, 2022

March 2022 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee notes that news about COVID-19 continues to emerge. Monitor your state or local health department for more information. Below are some updates and suggestions for individuals with sickle cell disease. Several studies have examined the effects of COVID-19 infection in […]

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Walk! Run! Bike! With a Purpose

February 10, 2022

March 12, 2022 | 9AM Where? Virtual or Fairfax Station, VA Please scan the QR code below to Walk/Run/Bike to help benefit SCDAA

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SCDAA names Regina Hartfield CEO

January 16, 2022

The Sickle Cell Disease Association of America (SCDAA) named Regina Hartfield as CEO and president effective January 14, 2022. Hartfield has served on the association’s board of directors for three years, including as chair of the fundraising committee.

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MARAC Advisory Statement: Update About Covid-19

December 26, 2021

December 23, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee reminds the sickle cell community that the COVID-19 pandemic is having another increase in infections. New variants like omicron are emerging, as are common for RNA viruses, and vaccination rates need to consequently improve. Vaccinations can protect against severe […]

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Omicron Variant

December 5, 2021

According to the CDC: On November 24,2021, a new SaRs variant has been detected. The Omicron variant is expected to spread at a similar rate compared to the original COVID-19 virus. The CDC is currently investigating how effective vaccines are against the Omicron variant. The CDC continues to recommend masking in indoor settings regardless of […]

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SCDAA – Mobile Chapter host 8th Annual Toy Drive

December 5, 2021

SCDAA Mobile recently held their 8th annual toy drive. Supporters donated toys that are to be distributed to families with Sickle Cell Disease. If you missed out on the toy drive you can still donate to SCDAA – Mobile here.

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SCDAA announces new Clinical Trial Finder

December 4, 2021

SCDAA is announcing their new Clinical Trial Finder. This new web application is designed to be able to connect you to local sickle cell clinical trials. Simply answer a few question, enter your location and trial radius then be able to browse and connect with sickle cell clinical trials. Try out the new application today

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MARAC Advisory Statement Update About COVID-19 Vaccines

October 5, 2021

September 24, 2021 — News about COVID-19 continues to move quickly as we weather the pandemic. The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee provides the following updates on vaccination recommendations: 1.  Individuals with SCD are now eligible for the third dose of the COVID-19 vaccine. The CDC recommends that people […]

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