News


SCDAA names Regina Hartfield CEO

January 16, 2022

The Sickle Cell Disease Association of America (SCDAA) named Regina Hartfield as CEO and president effective January 14, 2022. Hartfield has served on the association’s board of directors for three years, including as chair of the fundraising committee.

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MARAC Advisory Statement: Update About Covid-19

December 26, 2021

December 23, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee reminds the sickle cell community that the COVID-19 pandemic is having another increase in infections. New variants like omicron are emerging, as are common for RNA viruses, and vaccination rates need to consequently improve. Vaccinations can protect against severe […]

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Omicron Variant

December 5, 2021

According to the CDC: On November 24,2021, a new SaRs variant has been detected. The Omicron variant is expected to spread at a similar rate compared to the original COVID-19 virus. The CDC is currently investigating how effective vaccines are against the Omicron variant. The CDC continues to recommend masking in indoor settings regardless of […]

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SCDAA – Mobile Chapter host 8th Annual Toy Drive

December 5, 2021

SCDAA Mobile recently held their 8th annual toy drive. Supporters donated toys that are to be distributed to families with Sickle Cell Disease. If you missed out on the toy drive you can still donate to SCDAA – Mobile here.

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SCDAA announces new Clinical Trial Finder

December 4, 2021

SCDAA is announcing their new Clinical Trial Finder. This new web application is designed to be able to connect you to local sickle cell clinical trials. Simply answer a few question, enter your location and trial radius then be able to browse and connect with sickle cell clinical trials. Try out the new application today

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MARAC Advisory Statement Update About COVID-19 Vaccines

October 5, 2021

September 24, 2021 — News about COVID-19 continues to move quickly as we weather the pandemic. The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee provides the following updates on vaccination recommendations: 1.  Individuals with SCD are now eligible for the third dose of the COVID-19 vaccine. The CDC recommends that people […]

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MARAC Issues Updated Covid-19 Guidance

September 20, 2021

The Sickle Cell Disease Association of America Medical and Research Advisory Committee has released two statements with updated COVID-19 guidance. MARAC recommendations are making a minor shift to emphasize a more individualized approach and that people with sickle cell disease should have access to monoclonal antibody (mAbs) treatment according to establish guidelines, to prevent mild […]

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Sickle Cell Trait Volunteers Needed

April 27, 2021

You are subscribed to receive research study announcements from the National Institutes of Health (NIH) Clinical Center in Bethesda, Maryland. To learn more about this NIH study #18-H-0146, or other studies, please call us at 866-444-1132. Sickle Cell Trait Volunteers Needed Doctors at the National Institutes of Health (NIH) seek volunteers with sickle cell trait for […]

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Sickle cell disease patients now eligible for COVID-19 vaccine in Indiana

March 27, 2021

According to Indiana Hemophilia & Thrombosis Center, sickle cell disease that are at least 16 years old are now eligible for the COVID-19 vaccine in Indiana. More Information about this, including how to sign up can be found here.  

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Statement from the Sickle Cell Disease Association of America Medical and Research Advisory Committee (SCDAA MARAC)

February 19, 2021

February 16 2021 – We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical trials of its LentiGlobin Gene Therapy for Sickle Cell Disease (bb1111). We have investigated the situation, and we have met with bluebird bio to discuss the information available to the public. MARAC is monitoring […]

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