Mary F. B. Murphy began her trail-blazing work by opening the first sickle cell disease foundation in Florida in 1972 and began operating the organization out of her own home. Today, that organization has grown to serve 135 families with sickle cell disease. Please click here to learn more about Mary’s journey
A national awareness campaign to celebrate World Sickle Cell Awareness Day on June 19, 2022. We invite you to join with friends, family, neighbors and others in your community, as people around the nation and across the globe, host and hold local gatherings to shine the light on sickle cell disease. Together, we must and […]
SAVE THE DATE! ASCAT – The 17th Annual Sickle Cell & Thalassemia Conference Date: Thursday 20th – Saturday 22nd October 2022 Event Location: Park Plaza Westminster Bridge, London We are pleased to announce the 17th Academy for sickle cell and thalassaemia (ASCAT) conference, Park Plaza Westminster, London 19-22 October: Partners, European Hematology Association and British […]
March 2022 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee notes that news about COVID-19 continues to emerge. Monitor your state or local health department for more information. Below are some updates and suggestions for individuals with sickle cell disease. Several studies have examined the effects of COVID-19 infection in […]
Mark your calendar: SCDAA’s 2022 Advocacy Day event to be held virtually on April 5! Advocacy Day is the perfect opportunity for patients and caregivers affected by sickle cell disease to learn how to share their voice to advocate for issues that are important to them. Stay tuned – registration will open soon!
March 12, 2022 | 9AM Where? Virtual or Fairfax Station, VA Please scan the QR code below to Walk/Run/Bike to help benefit SCDAA
The Sickle Cell Disease Association of America (SCDAA) named Regina Hartfield as CEO and president effective January 14, 2022. Hartfield has served on the association’s board of directors for three years, including as chair of the fundraising committee.
December 23, 2021 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee reminds the sickle cell community that the COVID-19 pandemic is having another increase in infections. New variants like omicron are emerging, as are common for RNA viruses, and vaccination rates need to consequently improve. Vaccinations can protect against severe […]
According to the CDC: On November 24,2021, a new SaRs variant has been detected. The Omicron variant is expected to spread at a similar rate compared to the original COVID-19 virus. The CDC is currently investigating how effective vaccines are against the Omicron variant. The CDC continues to recommend masking in indoor settings regardless of […]
SCDAA Mobile recently held their 8th annual toy drive. Supporters donated toys that are to be distributed to families with Sickle Cell Disease. If you missed out on the toy drive you can still donate to SCDAA – Mobile here.