SCDAA is announcing their new Clinical Trial Finder. This new web application is designed to be able to connect you to local sickle cell clinical trials. Simply answer a few question, enter your location and trial radius then be able to browse and connect with sickle cell clinical trials. Try out the new application today
CHW Flyer-2 If you have a passion for community health or you have been personally affected by SCD, SCDAA encourages you to apply for community health worker (CHW) training. Our program offers comprehensive online self-paced skills training and professional development designed to give aspiring CHWs an opportunity to gain knowledge and experience in SCD related […]
September 24, 2021 — News about COVID-19 continues to move quickly as we weather the pandemic. The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee provides the following updates on vaccination recommendations: 1. Individuals with SCD are now eligible for the third dose of the COVID-19 vaccine. The CDC recommends that people […]
The Sickle Cell Disease Association of America Medical and Research Advisory Committee has released two statements with updated COVID-19 guidance. MARAC recommendations are making a minor shift to emphasize a more individualized approach and that people with sickle cell disease should have access to monoclonal antibody (mAbs) treatment according to establish guidelines, to prevent mild […]
You are subscribed to receive research study announcements from the National Institutes of Health (NIH) Clinical Center in Bethesda, Maryland. To learn more about this NIH study #18-H-0146, or other studies, please call us at 866-444-1132. Sickle Cell Trait Volunteers Needed Doctors at the National Institutes of Health (NIH) seek volunteers with sickle cell trait for […]
February 16 2021 – We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical trials of its LentiGlobin Gene Therapy for Sickle Cell Disease (bb1111). We have investigated the situation, and we have met with bluebird bio to discuss the information available to the public. MARAC is monitoring […]
December 14, 2020 – News is evolving rapidly about COVID-19 and COVID-19 vaccines. Early results from the COVID-19 vaccine trials are very promising, although the true benefits and risks will not be known until a larger number of people receive the vaccine. The Centers for Disease Control and Prevention (CDC) lists sickle cell disease (SCD) […]
Hosted by the National Organization for Rare Disorders (NORD) Would you like a quick update on what is being done to detect and combat COVID-19? Please join us for a free 30-minute webinar featuring infectious disease specialist and public health epidemiologist, Dr. Rishi Desai. This webinar will address the status of testing, the drugs under […]
Hosted by the American Public Health Association and the National Academy of Medicine The fifth COVID-19 Conversations webinar will provide an update on the state of testing for COVID-19, what data the different tests being developed will provide, how we can use that data to inform plans to ease physical distancing, and the equity issues […]
This Southeast Prevention Technology Transfer Center webinar will help public health professionals identify practical strategies to address significant challenges and barriers for the achievement of optimal health equity. April 1, 12:00 pm ET Register