Archives


NORD Free Upcoming Webinar – Tuesday, March 31, 2020 Time: 2:00 pm – 3:00 pm ET

March 25th, 2020

A Rare Response: Addressing the COVID-19 Pandemic As leaders in the rare community, we recognize that community members are worried. Do you need strategies for coping, staying healthy and reducing anxiety during this uncertain period? Please join NORD for a special webinar featuring our invited guests for guidance on living with a rare disease and […]

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COVID-19 Conversations: The Science of Social Distancing – March 25, 2020 Time: 3:00 pm ET

March 25th, 2020

Hosted by the American Public Health Association and the National Academy of Medicine, this is the first webinar in the series, Responding to COVID-19: A Science-Based Approach. Register

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Leveraging a Health Equity Approach to Improve Prevention Efforts – April 1, 12:00 pm ET

March 31st, 2020

This Southeast Prevention Technology Transfer Center webinar will help public health professionals identify practical strategies to address significant challenges and barriers for the achievement of optimal health equity. April 1, 12:00 pm ET Register    

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UPDATE: The Hemoglobinopathy Counselor Training Course now Virtual on April 15-16, 2020

April 1st, 2020

Due to the COVID-19 outbreak the decision was made to transition the 2020 Hemoglobinopathy Counselor Training Course to a VIRTUAL event. The two-day course, presented by the Cincinnati Comprehensive Sickle Cell Center, will still take place on April 15th and 16th, but we will be using Zoom web conferencing to host virtual sessions. The course registration fee is […]

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The Impact of COVID-19 on Sickle Cell Disease – April 7, 2020 @ 7:00 PM ET

April 6th, 2020

Description:  “Georgia COVID-19 Health Alert Webinar for Patients Living With Sickle Cell Disease and their Caregivers.” Join Dr. Biree Andemariam along with other expert panelists on April 7, 2020 @ 7:00 PM to discuss the impact of COVID-19 on sickle cell disease. Register for Webinar below. WEBINAR REGISTRATION

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SCDAA’s Response to the COVID-19 Pandemic – April 8, 2020 Time: 6:30 – 7:30 PM ET

April 6th, 2020

Join Dr. Biree Andemariam, Chief Medical Officer and Dr. Lewis Hsu, Vice Chief Medical Officer April 8, 2020 Time: 6:30 – 7:30 PM ET (US and Canada) Join Zoom Meeting https://zoom.us/j/618396885 Meeting ID: 618 396 885 To join by phone: +1-646-876-9923 US (New York) +1-312-626-6799 US (Chicago) Use Meeting ID: 618 396 885# Dial by your […]

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COVID-19 Conversations Webinar Series – April 9, 2020 Time: 12:30 – 2 pm ET

April 7th, 2020

Emerging Evidence for COVID-19 Spread and Treatment – April 9, 2020 @ 12:30 – 2 pm ET Hosted by the American Public Health Association and the National Academy of Medicine The third COVID-19 Conversations webinar will discuss: emerging evidence on SARS-CoV-2 surface and aerosol transmission and stability; emerging and promising treatment modalities for COVID-19, including […]

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COVID-19 Conversations Webinar Series – April 15, 2020 Time 5:00 pm ET

April 13th, 2020

Crisis Standards of Care During COVID-19 – April 15, 2020 Time 5:00-6:30 pm ET Hosted by the American Public Health Association and the National Academy of Medicine  The fourth COVID-19 Conversations webinar will provide an overview of crisis standards of care during a pandemic, challenges for adapting such standards to rapidly evolving clinical care guidelines, […]

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Called to Action: NORD’s Response to COVID-19 – April 21, 2020 3:30 PM ET

April 16th, 2020

For more than 35 years, the National Organization for Rare Disorders (NORD) has been focused on improving the health and well-being of people living with rare diseases. Now, as the rare community confronts the COVID-19 outbreak, you are invited to join NORD for a free 30-minute webinar to hear about how people with rare diseases […]

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Culture & Care during the COVID-19 Pandemic: Yes, It Matters – April 20, 2020 at 2:00 pm ET

April 16th, 2020

COVID-19 Response Webinar Series hosted by the American Association of Colleges of Nursing Our cultural beliefs and values about health/illness/treatment, and those of our patients, may not align. As nurses, we must find common ground in order to provide culturally sensitive care. During this pandemic we can make a difference by leveraging opportunities and tools […]

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