Archives
ON WORLD SICKLE CELL DAY, MEDUNIK USA HIGHLIGHTS THE IMPORTANCE OF EARLY TREATMENT OF SICKLE CELL DISEASE
19 June 2019 ROSEMONT, PA, June 19, 2019 – This World Sickle Cell Day, Medunik USA, a company dedicated to improving the health and quality of life of Americans with rare diseases, highlights the importance of early treatment of sickle cell disease. “Sickle cell disease is a destructive nemesis. The keys to winning this life-long […]
Read MoreP.O.W.E.R ECHO Project CBO Training starting February 18, 2020
When: Feb 18, 2020 11:00 AM Eastern Time (US and Canada) Register in advance for this meeting: https://echo.zoom.us/meeting/register/vpMtcOGupzgsaf5KlqAhEibOijKXIQxcZQ After registering, you will receive a confirmation email containing information about joining the meeting.
Read MoreFORMA Therapeutics Announces FT-4202 Granted Fast Track Designation and Rare Pediatric Disease Designation for Treatment of Sickle Cell Disease
WATERTOWN, Mass. – February 20, 2020 – FORMA Therapeutics, Inc., a clinical-stage biopharmaceutical company focused on rare hematologic diseases and cancers, today announced the U.S. Food and Drug Administration (FDA) has granted Fast Track designation and Rare Pediatric Disease designation for its lead clinical asset, FT-4202, in development as a disease-modifying treatment for sickle cell […]
Read MoreSCDAA Advocacy Institute April 2021
Our Mission: To advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.
Read MoreSCDAA Leadership Academy – March 19, 2020
Topic: The Dynamics of Fundraising Trainer: Michelle Nusum-Smith Time: March 19, 2020 2:30 pm – 3:30 pm Get in touch with us today! Office location: 7240 Parkway Drive, Suite 180 Hanover, MD 21076 Contact information: (410) 528-1555 Website: www.sicklecelldisease.org
Read MoreP.O.W.E.R ECHO Project CHW Training – March 12, 2020 12:00 PM ET
Topic: Case Management 101 for Community Health Workers Register in advance for this meeting here
Read MoreCME/CEU Symposium on Sickle Cell Disease – March 27, 2020
March 27, 2020 8:30 am – 4:30 pm at Brookdale University Hospital & Medical Center One Brookdale Plaza Brooklyn, New York 11212 For Information Call: (718) 240-5904 or (718) 613-6874
Read MoreCDC Webinar: Update for Rural Partners, Stakeholders, and Communities on the Coronavirus Disease 2019 (COVID-19) Response – Monday, March 23, 2020 Time: 1:00 p.m. ET
Presenter: Dr. Jay Butler (Deputy Director for Infectious Diseases) The Centers for Disease Control and Prevention (CDC) is hosting a webinar to update rural stakeholders and communities on the COVID-19 response. To join the call, register here. Dr. Butler will share guidance with partners, public health practitioners, healthcare providers, and others working to protect the health of […]
Read MoreProject ECHO at Penn State is launching a COVID-19 ECHO Series – Friday, March 20, 2020 Time: 10 a.m. ET
Project ECHO at Penn State is launching a COVID-19 ECHO series to inform healthcare providers and administration of the latest best practices in emergency preparedness and patient treatment for COVID-19. These CME-eligible sessions will launch this Friday, March 20, 10 a.m. EST. Dr. Gavin Macgregor-Skinner, an infectious disease specialist and epidemiologist in public health sciences at […]
Read MoreUnderlying Medical Conditions and People at Higher Risk for Coronavirus Disease 2019 (COVID-19) – CDC COCA Call: Tuesday, March 24, 2020 at 2 pm ET
The Centers for Disease Control and Prevention (CDC) has announced a Clinician Outreach and Communication Activity (COCA) Call on March 24th at 2 pm ET. Topic: Underlying Medical Conditions and People at Higher Risk for Coronavirus Disease 2019 (COVID-19) During this COCA call, presenters will focus on current information about people who are higher risk […]
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