Author Archives: Brad Landicho

September 21 | 1PM EST | Virtual

Join SCDAA and Sick Cells at the upcoming Congressional Awareness Briefing on Sickle Cell Disease, presented by the newly registered SCD caucus.

This momentous briefing will be hosted by caucus co-chairs Rep. Barbara Lee (D, CA-13). Learn more about the current state of SCD in the U.S. and hear from co-chairs about their plans to raise awareness, educate others and improve health outcomes for individuals living with sickle cell disease across the country. Click here to register in advance for this event.

Researchers, community-based member organizations, physicians, nurses, social workers or anyone working on behalf of people living with sickle cell disease and their families are welcome to submit their work for the chance to present during our 49th Annual National Convention in October. Submission deadline is July 9, 2021

Click here for more details

Take part in this national awareness campaign to celebrate World Sickle Cell Awareness Day! Join with friends, family, neighbors and others in your community as people around the nation and across the globe shine the light on sickle cell disease. Together, we must and will find a universal cure for sickle cell disease!

Click here for more details

SCDAA is searching for the newest Teen Ambassador!

SCDAA’s Teen Ambassador plays an important role in our organization by representing their generation. Make your voice heard and make an impact on the SCD community! Interested candidates must be between 13-17 years of age and have sickle cell disease. Apply or nominate a candidate before April 29!

click here for more details

According to Indiana Hemophilia & Thrombosis Center, sickle cell disease that are at least 16 years old are now eligible for the COVID-19 vaccine in Indiana. More Information about this, including how to sign up can be found here.

July 10, 2021: 9-11 AM

Support SCDAA and walk, run or dance where you are virtually.

Celebrate your steps with us on July 10. Prizes for top individuals and teams.

Registration opening soon

See attached form for details: Walk with the Stars Flyer_LO

Sponsorships available, contact bfrancis-gibson@sicklecelldisease.org

Cayenne Wellness Center, Sickle Cell Consortium Axis Advocacy and SCAASF invite you to attend a two day Town Hall Briefing: Gene Therapy and Sickle Cell Disease.

Join Drs. Lakiea Bailey, and Carolyn Rowley, Akshay Sharma, and Mark Walters on Tuesday (2/23) and Wednesday (2/24) as we unpack the history and science of gene therapy, the bluebird bio trial, patient safety protocols, and address warrior questions and concerns.

Day One: Tuesday 2/23 4-6PM PST

Day Two: Wednesday 2/34 4-6PM PST

Please click here to register

CBO Organization: The Sickle Cell Association of New Jersey

Presenter: Mary Lamar

Topic: Retaining CHWs