Advocacy Day
Join Sickle Cell Disease Association of America, Inc. for its 2019 Advocacy Day as we advocate for those affected by sickle cell disease (SCD).
Click here to register today!
The host hotel for the event is the Kellogg Conference Center at Gallaudet University located at:
1800 Florida Ave NE,
Washington, DC 20002
The event will be held in Washington, DC from April 8-9, 2019 at the Kellogg Conference Hotel at Gallaudet University and on Capitol Hill. This year’s Advocacy Day campaign will focus on key legislative issues that are important to individuals living with SCD and their families, including promoting stable funding for research, better healthcare access, expanded programs, and increased education and awareness for the SCD community and programs throughout our nation. We look forward to an exciting event that will feature:
Welcome Reception
Advocacy Training
Meet Legislative Champions
Collaboration with Federal Partners
Advocacy Day plays a significant role in extending our outreach strategy to further engage elected officials on the multifactorial aspects of sickle cell disease, to share personal stories from individuals living with SCD, and to advocate for key legislation that would address research funding, community health responses, and improved treatment options.
The two-day event brings together individuals representing our 46 chapters, affiliates and supporters representing 35 states from across the country to meet with Members of Congress and staff members, and to connect with one another.
*AGENDA
April 8-9, 2019
6:30PM – 8:30PM
Welcome Reception, Program and Distribution of Legislatives Materials
APRIL 9, 2019
Capitol Hill Visits
*Agenda is subject to change*
For more information or questions, please contact SCDAA Member Services Advisor Temi Makinde at tmakinde@sicklecelldisease.org or call 410-528-1555.