ON WORLD SICKLE CELL DAY, MEDUNIK USA HIGHLIGHTS THE IMPORTANCE OF EARLY TREATMENT OF SICKLE CELL DISEASE

24 Jun 2019
19 June 2019 ROSEMONT, PA, June 19, 2019 - This World Sickle Cell Day, Medunik USA, a company dedicated to improving the health and quality of life of Americans with...

Texas State Representative Jarvis Johnson Files Four Sickle Cell Disease Related Bills

15 Mar 2019
Sickle Cell Association of Houston has been working on new state legislation in Texas, and on March 6, 2019, State Representative Jarvis Johnson filed four bills that will raise awareness,...

GBT Launches ACCEL Grants Program to Improve Access to Care for People with Sickle Cell Disease

01 Mar 2019
February 22, 2019 | —The Access to Excellent Care for Sickle Cell Patients Pilot Program (ACCEL) Supports Novel Projects Aimed at Improving Access to High-Quality Healthcare for People with Sickle...

Charles F. Whitten: Black History Month SCD Pioneers 2019

01 Mar 2019
February 27, 2019 Dr. Charles F. Whitten: A Physician. Medical pioneer. Founder and President Emeritus of the Sickle Cell Disease Association of America, Inc. Dr. Charles F. Whitten was a...

American Society of Hematology to Launch Sickle Cell Disease Clinical Trials Network

09 Jan 2019
Published on: September 12, 2018 (WASHINGTON, September 12, 2018) — The American Society of Hematology (ASH) is launching a sickle cell disease (SCD) clinical trials network in order to accelerate...

NIH researcher presents encouraging results for gene therapy for severe sickle cell disease

18 Dec 2018
WHAT: A scientist from the National Institutes of Health will present promising, early results from a human clinical trial testing a novel gene replacement therapy in people with severe sickle cell...

Sickle Cell Groups, Pfizer Work to bring Black Americans Into Clinical Trials

27 Apr 2018
It’s been nearly half a century since the end of Alabama’s Tuskegee experiment, the infamous 40-year study in which the U.S. government intentionally gave 399 syphilis-infected black men useless placebos...

National Minority Quality Forum Joins NIH in Launching the All of Us Research Program to Advance Precision Medicine

27 Apr 2018
On May 6, the National Institutes of Health will open national enrollment for the All of Us Research Program in collaboration with the National Minority Quality Forum and other partners....

Contact Your Senators re: Sickle Cell Disease Treatment Act, HR 2410, Senate Companion Bill

27 Apr 2018
Legislative Victories For The Sickle Cell Community Last month, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed...