About

For more than 49 years, the Sickle Cell Disease Association of America, Inc. (SCDAA) and its 53-member organizations and affiliates have demonstrated how community-based organizations can work as partners with medical facilities, and local and state government agencies to pursue national health care objectives. SCDAA has recognized that one agency cannot meet all the needs and challenges of those living with sickle cell disease (SCD) and their families. As part of its strategic efforts and to enhance its effectiveness, SCDAA has partnered with government, private and other not-for-profit agencies and programs at the local, state, and national levels. These have included National Association for the Advancement of Colored People (NAACP), Urban League, National Institutes of Health (NIH), Health Resources and Services Administration (HRSA), Centers for Disease Control (CDC), the United Way, the Robert Wood Johnson Foundation and many others.

SCDAA continues to recognize how critical it is to garner the needed support for the social and public health aspects of sickle cell disease as fundamentals to a comprehensive plan that meet the needs of this population.

To advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.

To continue to be a leader in promoting and advancing initiatives focused on people affected by sickle cell conditions worldwide.