Project Sub-Awardees 2015-2016

Region 2

New Jersey

Sickle Cell Association of New Jersey

1016 N. Broad Street

Newark, NJ, 07102

Ph: (908) 247-9130

Email: sicklecellanj@gmail.com

Website: www.sicklecellnewjersey.org

Mission:In concordance with the mission of the Sickle Cell Disease Association of America “to advocate for and enhance our membership’s ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease.” SCANJ is here to help, educate, and advocate in the fight against sickle cell disease.

Region 3

Pennsylvania

Children’s Sickle Cell Foundation

226 Paul Street

Pittsburgh, PA , 15211

Ph: (412) 488-2723

Email: mmatthews@cdsfkids.org

Website: www.cscfkids.org

Mission:To provide social, educational, and economic support for children with sickle cell disease and their families.

Sickle Cell Disease Association of America Philadelphia Delaware Valley Chapter

5070 Parkside Avenue, Suite 1404

Philadelphia, PA , 19131

Ph: (215) 471-8686

Email: stanley.simpkins@verizon.net

Website: www.sicklecelldisorder.com

Mission:To serve as a vehicle and resource center for the psychosocial and social service needs of children, adolescents, adults and families affected by sickle cell disease. SCDAA/PDVC seeks to develop, manage and allocate resources in partnership with hospitals, charitable organizations community based organizations and social service agencies.

Region 4

Georgia

Sickle Cell Foundation of Georgia

2391 Benjamin E. Mays Drive

Atlanta, GA, 30311

Ph:(404) 755-7955

Email: dmcghee@sicklecellga.org

Website: www.sicklecellga.org

Mission:To engage, educate, and energize the community to improve the quality of life for people affected by sickle cell disease.

North Carolina

Piedmont Health Services and Sickle Cell Agency

1102 E. Market Street

Greensboro, NC, 27401

Ph:(336) 274-1507

Email: info@piedmonthealthservices.org

Website: www.piedmonthealthservices.org

Mission: To provide outreach, education, screening and case management for people with high-risk health problems.

Region 5

Illinois

Sickle Cell Disease Association of Illinois

8100 S. Western Avenue

Chicago,IL, 60620

Ph:(773) 526-5016

Email: sicklecelldisease-illinois@scdai.org

Website: www.sicklecelldisease-illinois.org

Mission:Sickle Cell Disease Association of Illinois’ (SCDAI) primary mission is to enhance the quality of life for people with sickle cell disease and their families. To effectively achieve this goal, SCDAI acts as an advocate for improved healthcare and services for sickle cell patients by educating and informing the community through outreach programs.

Michigan

Sickle Cell Disease Association of America, Michigan Chapter

18516 James Couzens

Detroit, MI, 48235

Ph:(313) 864-4406

Email: info@scdaami.org

Website: www.scdaami.org

Mission:To maximize the quality of life of individuals living with sickle cell disease.To enable individuals with sickle cell trait to make informed decisions with respect to family planning.To provide education and testing for the general public.

Region 7

Missouri

St. Louis Sickle Cell Association

1600 Saint Anthony Lane

Florissant, MO, 63033

Ph:(314) 277-3950

Email: rbritts@sicklecellassociation.org

Website: sicklecellassociation.org

Mission:The Sickle Cell Association is a not-for-profit organization that strives to diminish suffering and improve the quality of life for those individuals affected by sickle cell disease. We are committed to raising the public’s awareness and providing education to patients, their families, health professionals, legislators and the general public about sickle cell disease, its management and its challenges.

Region 9

California

Sickle Cell Foundation of California

3602 Inland Empire Boulevard, Suite B140

Ontario, CA, 91764

Ph: (909) 743-5226

Email: info@scdfc.org

Website: www.scdfc.org

Mission:To provide education and life-enhancing programs and services to individuals withsickle cell disease, to broaden publicawareness about sickle cell disease and to promote medical research and educationto ultimately find a cure.

Region 10

Oregon

Sickle Cell Anemia Foundation of Oregon

4927 NE 55th Avenue

Portland,OR, 97218

Ph: (503) 249-1366

Email: marcia@sicklecelloregon.org

Website: www.sicklecelloregon.org

Mission:To promote awareness of the genetic causes and health effects of sickle cell anemia and related conditions, and to provide leadership aimed at improving the quality of life for people who suffer from this terrible but treatable disease.

Region 2 – State Partners

New York

Queens Sickle Cell Advocacy Network (QSCAN)

207-08 Hollis Ave.

Queens Village,NY, 11429

Ph: 718-712-0873

Email: gloria.rochester@gmail.com

Website: www.qscan.org

Mission:A deep sense of commitment; it focuses on those with Sickle Cell conditions. We provide a clear sense of direction for families and individuals, enabling them to actively participate in their communities and health care needs.

The Sickle Cell Thalassemia Network

1139 St. Johns Place,

Brooklyn,NY, 11213-2617

Ph: (347) 533-8485

Email: info@sctpn.org

Website: www.sctpn.net/1viralvoice

Mission:To improve the quality of life for individuals and families living with sickle cell disease, thalassemia and other hemoglobin disorders through education, advocacy and support interactions.To create a community where we can share our experiences as a collective to improve and impact the education an awareness of sickle cell disease, thalassemia and other hemoglobin disorders.

Region 3 – State Partners

Delaware

Tova Community Health, Inc.

213 Greenhill Ave.,

Wilmington,DE, 19805

Ph: 302-429-5870 (EXT 120)

Email: nina@tovacommunityhealth.org

Website: www.tovacommunityhealth.org

Mission:TOVA Healthcare in association with TOVA Community Health aims to build capacity for research, awareness and access to quality care for persons living with a chronic medical condition(s) like Sickle Cell Disease. Our mission is to provide comprehensive holistic compassionate care services to achieve optimal health outcomes.

Maryland

Maryland Sickle Cell Disease Association, Inc. – Columbia, MD

775 Centre Park Drive,Suite 701

Columbia ,MD, 21045

Ph: 410-465-4822

Email: info@marylandsicklecelldisease.org

Website: www.marylandsicklecelldisease.org

Mission: To improve the quality of life for those affected by sickle cell disease by promoting advocacy, education, research and excellent healthcare delivery.

Pennsylvania

South Central PA Sickle Cell Council

2000 Linglestown Road Suite 204

Harrisburg, PA, 17110

Ph:717-234-3358

Email: findacure@scpascc.org

Website: www.scpascc.org

Mission: To partner with the health community to provide support to clients, families and caregivers affected by Sickle Cell Disease and Trait, in 26 PA Counties, through advocacy, public awareness, intervention and education.

Virginia

Sickle Association, Inc.

861 Glenrock Road

Norfolk, VA, 23502

Ph:757-466-0332

Email: sicklecellceo@aol.com

Region 4 – State Partners

Alabama

Central Alabama Chapter of the Sickle Cell Foundation

3813 Avenue I

Birmingham, AL, 35218

Ph: 205-780-2355

Email: sblewis452@aol.com

Website: www.sicklecellbham.com

Mission:To enhance the quality of life of individuals and families affected by sickle cell disease through education, advocacy, and support.

Sickle Cell Foundation Greater Montgomery

3180 US Highway 80 West

Montgomery, AL, 36108

Ph: 334-286-9122

Email: info@riverregionsicklecell.com

Website: www.riverregionsicklecell.com

Mission:It is our mission to improve the lives of those suffering with the disease, while working closely with individuals and agencies conducting research.

Georgia

Association of Sickle Cell Lower Chattahoochee Regional Support Group

4519 Woodruff Road Unit 4

Columbus, GA, 31907

Ph:706-566-6329

Email: sicklecellcolumbus@gmail.com

Website: www.volunteer.unitedwayofthecv.org/agency/detail/?agency_id=25514

North Carolina

Community Health Interventions & Sickle Cell Agency, Inc.

2409 Murchison Rd,

Fayetteville, NC, 28301

Ph:910-488-6118

Email: osc@nc.rr.com

Website: www.communityhealthinterventions.org

Mission: Community Health Interventions and Sickle Cell Agency, Inc., is dedicated to addressing various health related challenges that significantly affect our community’s health and wellness. In conjunction with our health and human service initiatives, CHI will provide education, prevention, and implement & support documented best practices for interventions, services, and treatment in our efforts to eliminate health disparities.

South Carolina

James R. Clark Memorial Sickle Cell Foundation

1420 Gregg Street

Columbia, SC, 29201

Ph:803-765-9916

Email: sicklecell@sc.rr.com

Website: www.jamesrclarksicklecell.org

Mission:To optimize the social, psychological, and physiological well-being of individuals with sickle cell disease and to decrease the incidence of sickle cell disease through genetic screening, counseling, and education.

Tennessee

The Sickle Cell Foundation of Tennessee

680 Oakleaf Office Lane, Suite 101

Memphis, TN , 38117

Ph:901-552-4267

Email: mjackson.sicklecelltn@gmail.com

Website: www.sicklecelltn.org

Mission: To provide educational awareness, comprehensive social services, and collective supportive impact to all persons affected by Sickle Cell Disease within our service areas.

Region 5 – State Partners

Indiana

Martin Center – Sickle Cell Initiative

3549 N. College Ave.

Indianapolis, IN, 46205

Ph:317-927-5158

Email: information@themartincenter.org

Website: www.themartincenter.org

Mission:To aid and enhance the lives of those affected by Sickle Cell and associated disorders by providing client services, patient and family advocacy, and education.

Ohio

Ohio Sickle Cell and Health Association

341 South 3rd Street, Suite 200

Columbus, OH, 43215

Ph:(614) 228-0157

Email: oscha@aol.com

Website: www.ohiosicklecell.org/new

Mission:To provide Education, Advocacy and Support to persons and families affected and at-risk for Sickle Cell Disease through effective approaches to Sickle Cell Services.

Region 9 – State Partners

California

Cayenne Wellness Center

P.O. Box 3856

Glendale, CA, 91221

Ph:(818) 940-0079

Email: info@cayennewellness.org

Website: www.cayennewellness.org

Mission:To improve the nutritional and mental health of the public. We achieve this mission through education, research, and public awareness initiatives and community outreach programs that promote good nutrition and mental health.

Nevada

Alliance for Childhood Disease dba Children’s Specialty Center of Nevada3121 S.

Maryland Pkwy #300

Las Vegas, NV, 89109

Ph: (702) 581-3177

Email: alogan@cure4kids.org

Website: www.cure4thekids.org

Mission: To advance cures and means of prevention for pediatric catastrophic diseases through research and treatment, while providing access to quality medical care for the uninsured, under insured, and medically indigent children of Nevada with complex medical issues; through a charity care plan, education, research, and advocacy. Consistent with the vision of our founders, that no child be deprived of care based on a family’s inability to pay for services.